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This is Sam Frears' story.

This is also the story of an actor, a rock-climber and a man born with an extremely rare genetic disorder only affecting Ashkenazi Jews. Sam was supposed to live to the age of 5. In February, he celebrated his 40th birthday.

Challenged by blindness and a body under great stress, Sam Frears is trying to live an ordinary life under extraordinary circumstances His struggles and triumphs offer an illuminating look at the differences - and similarities - that make us human.

For those who enjoyed My Left Foot and Stuart: A Life Backwards, this Penguin Special offers a fresh look at what it's like to be Sam.

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