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Synopsis

Dafnis was born in 1998, covered with lots of nevi. His condition is named Congenital Melanocytic Nevi (CMN). Within a month, he went for surgery to remove as many as possible. In his early childhood, he had four surgeries. Complications appeared, but weren’t diagnosed correct. He has had seizures, caused by Neurocutaneous Melanocytosis (NCM). NCM is a rare and complication of CMN and can be fatal. He outgrew his seizures. He became a joyful kid with a good sense of humor. Until January 2012, he came home from school nauseous and dizzy after sports class. It was the beginning of a six month battle against NCM. Even then, he didn’t lose his sense of humor. In July 2012, he passed away at the age of 13 years. His last wish was not to be forgotten. He left behind an older sister, younger brother and both his parents. During his battle his mother wrote e-mails to keep friends, family and medical staff informed. After he died she used the documents to write this book. She wants to find an answer why it happened, why he had to die at such a young age and share her feelings on how to deal with great loss.

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